Ostomy Links

UOAC Ostomy Youth Camp Mission Statement

To provide an opportunity for young people aged 9-18 with consideration to emotional growth and maturity, who have ostomies or other special related needs (intermittent catheterization; urinary or bowel incontinence; internal pouch; Crohn's disease or ulcerative colitis), to attend camp and participate in camp activities under professional supervision
Provide formal/informal education on:
anatomy and physiology
self esteem and coping
sexuality

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CHAMPS is an appeal set up to raise awareness of children with Bowel and Bladder disorders, dysfunctions and diversions. We raise funds that will directly benefit these children by supporting research, awareness campaigns and support groups.

CHAMPS

Diversions is a support network, based in the North West of England, for families with a child or young person living with a bladder or bowel diversion / dysfunction. We provide opportunities for people to experience a range of different fun activities through our regular programme of events. These include outdoor adventures and team building tasks, art work-shops and day trips out.

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"Now available exclusively from Hollister, the ostomy Shadow Buddy doll can help children through the experience of ostomy surgery. The Shadow Buddy doll was designed by the mother of a pediatric ostomy patient as a "special friend" for her son. The ostomy Shadow Buddy is a muslin doll that has a stoma just like the child who is undergoing ostomy surgery. For each child, the ostomy Shadow Buddy is someone who is "just like me." For health-care professionals, the Shadow Buddy is an excellent educational tool for both children and parents.

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Breakaway Visits is the only England & Wales based charity offering residential Weekend Activity Breaks for young people with bowel and / or bladder diversions and / or dysfunctions.

The activities are designed as confidence building for children aged 4 -18.

The Weekend Activity Breaks offer the whole family the opportunity to meet others in similar situations, talk about and share their experiences in a relaxed and friendly environment.

Breakaway Visits

This is a forum specifically for those with ostomies who are aged 18 and under. No one over this age will interfere unless specifically asked to. Please feel free to post if you are 18 years of age or under. NO ADULTS ALLOWED. This is a forum specifically for our younger members.
Shaz's Ostomy Pages - Just for Kids

For discussing issues relevant to ostomates and people with diversions between the ages of 11 and 18.

UOAA Teen Network

"My parents say to me now that their biggest worry about the surgery was that someday I would turn around and say to them "why did you let them do this to me?" I never have."

Shaz was just 10 years old when her parents had to make the decision for her to undergo ileostomy surgery.
More than 30 years later she says
"I have to say that whilst I would, of course, prefer not to have an ileostomy, I am greatful for every day of life my stoma has given back to me and do not regret it for one minute."

Read her story here:

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For parents of children who have or will have an ostomy or related surgery.
Parents Discussion

Young Ostomates United (YOU) Inc was formed in October 1989, originally under the name "Young Ostomy United".

We are a non-profit organisation that aims to encourage support and friendship between young people with a stoma, their families and friends and to provide resource material to both new and well-established ostomates.

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