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Ostomyland Chat Room

Support and Information which is useful for all Ostomates

The Social Side - for all Ostomates

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Pre-Op Information

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Ileostomy Information

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Gay with an Ostomy Information

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Conditions leading to Ostomies

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~ Ostomy Links ~


Internal Pouch

Support and Information specifically for people with an internal pouch.



Internal Pouch Support

UOAA Continent Diversions
For discussion of intestinal and urinary diversions that avoid wearing an external waste collecting device.
UOAA Continent Diversions

The J Pouch
This site contains full information about the procedure as well as having an excellent Message Board.
J Pouch Board

Living with your J Pouch
(an excellent, 3D presentation).

A clear explanation of what the J Pouch surgery involves, with diagrams.
Living with your J Pouch

The J Pouch Buddy List
This is a list of volunteers who are willing to be a contact person for patients who need help, support, advice, a hospital visit or phone call. We will list your Name (first name or nickname), e-mail address, City and State. When you are contacted for help, you can correspond with the patient by e-mail and decide if you want further contact by phone or in person.
The J Pouch Buddy List

The J Pouch - procedures and treatments
A brief explanation with diagrams of what the J Pouch is and how it works.
The J Pouch

Types of Ostomies - J Pouch
An explanation of J Pouch surgery, with diagrams, from Shaz's Ostomy Pages.
Types of Ostomies - J Pouch

Message Board J Pouch - Internal Pouch - Section
A place to post your j pouch surgery, Kock's Pouch surgery or BCIR surgery questions.
Shaz's Ostomy Pages - J Pouch Board

Message Board J Pouch - Internal Pouch - Section.
A place to discuss and ask questions about the various internal pouch operations available today.
Jason's Website - J Pouch Board

The Kangaroo Club (Oxford Radcliffe Hospital, UK)
The Kangaroo Club was the very first support group to be set up for ileo-anal pouch patients in 1991 at the John Radcliffe Hospital, Oxford.

The group was initially set up as it was felt by a number of individuals to be an area where support following surgery was vital. As these patients no longer had an ileostomy, they considered themselves ineligible to see the stoma care nurse, however they still experienced many problems unique to pouch patients and still required professional advice and support, hence the Kangaroo Club was born.
The Kangaroo Club

Yahoo Group: J Pouch Support - Pre/Post Surgery Support
Pre/Post support for people having / going to have J-Pouch surgery.
J Pouch Board

MSN Group: The J Pouch
Support group.
J Pouch Board

The Koch Pouch - procedures and treatments
A good explanation with diagrams of what the Koch Pouch is (an internal pouch) and how it works.
The Koch Pouch

Types of Ostomies - Koch Pouch
An explanation of Koch Pouch surgery, with diagrams, from Shaz's Ostomy Pages.
Types of Ostomies - Koch Pouch

Contact list for those who have had Koch surgery
Information and email addresses of people willing to chat about the Koch Pouch.
Contact list

The BCIR Pouch
The BCIR is an alternative surgery to an ileostomy and features an internal pouch.
The BCIR pouch

Types of Ostomies - BCIR
An explanation of ileostomy surgery, from Shaz's Ostomy Pages.
Types of Ostomies - BCIR

The BCIR Pouch Message Board
A message board for all your questions about the BCIR.
The BCIR Pouch Message Board

The BCIR Pouch Chatroom
"Please join us on the first Tuesday of each month for our 'Live On-line Chats'."
The BCIR Pouch Chatroom

Contact list for those who have had BCIR surgery
Information and email addresses of people willing to chat about the BCIR.
Contact list

The Pull Thru network.
This procedure is more successful with young children than adults.
The Pull Thru network

Radical Cystectomy and Bladder Substitution (Neobladder) - opens in PDF
Information for patients and family.
Radical Cystectomy and Bladder Substitution (Neobladder)

Useful Links

Continent Ostomy Store
Stoma Coverings for Continent Ostomies. This is a US store, delivering within the US only. However, there are photographs of different products which are worth looking at to see what is available.
Continent Ostomy Store

The Quality Life Association, Inc.
"a non-profit nationwide association aimed at meeting the special needs of the continent ostomate and to educate others of the latest advances in ostomy options."
The Quality Life Association, Inc.

Contact Others.
Would you like to contact others? Post a message and read other messages here.
Click here to contact others.