Mitrofanoff Support

Mitrofanoff Support has a live chat room, social network and forum - please join us! WWW.MITROFANOFFSUPPORT.CO.UK

Mission
Mitrofanoff Supports primary role is to represent the interests of people with a Mitrofanoff, as we are experts in living with one. The overriding aim is to raise awareness of what it is like to have a Mitrofanoff and what it means to live with it. By doing this, we hope to address the general lack of public knowledge present and future.

Description
Whether you are someone with a bladder defects, are a family member, a carer or have a friend with this condition Mitrofanoff Support is here to help you with any questions, queries or concerns.
Bladder defects are not a subject that is openly discussed. Hence there is a general lack of public knowledge on what it is like to have a Mitrofanoff. We offer support and reassurance to anyone who may be about to have, or already has a Mitrofanoff and the people closest to them. This is because I felt there was not enough support and guidance out there for adults with Mitrofanoffs.

General information
The Mitrofanoff procedure creates a channel which acts in the same way as a urethra which is made from the appendix, bowel or both, as this is like a tube. The channel is made to go directly from the bladder to an exit either through the Navel or beside the it. Therefore intermittent self catheterisation via the Mitrofanoff is required to empty the bladder, without undressing or moving out of a wheelchair. This surgery is normally carried out in conjunction with another procedure, either to enlarge the bladder or to create a urinary reservoir.
Office hours: Monday - Friday 9.00 am - 17.30 pm (London, England, UK) However you may see us do extra from time to time.